1004.43521 Parkinson’s disease registry; public records exemption.—
(1) Information held in the Parkinson’s disease registry under s. 1004.4352 which identifies a patient is confidential and exempt from s. 119.07(1) and s. 24(a), Art. I of the State Constitution.
(2) Such information may be disclosed to the following:
(a) The Parkinson’s Disease Research Board.
(b) A private entity that the board has contracted with to establish and maintain the registry if such entity agrees to:
1. Submit a research plan to the board which specifies the exact nature of the information requested and the intended use of the information;
2. Maintain the confidentiality of the records or information if personal identifying information is made available to the entity;
3. Destroy any confidential records or information obtained after the research is concluded; and
4. Not directly or indirectly contact, for any purpose, any patient.
(3) This section is subject to the Open Government Sunset Review Act in accordance with s. 119.15 and shall stand repealed on October 2, 2031, unless reviewed and saved from repeal through reenactment by the Legislature.
